PARC Webinar Series - 2024

Monday July 8, 2024: Implications for rehabilitation of Achondroplasia: Developmental milestones, Assistive devices, Medication and Surgery

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Greetings and Introduction

Dr. Keren Politi, MD (moderator), Head, Pediatric Neurology, ALYN Hospital; PI, Helmsley Pediatric & Adolescent Rehabilitation Research Center, Jerusalem, Israel

An overview of Achondroplasia: Molecular basis and "natural history”

Dr. Ekkehart Lausch, PD Dr. med., Department of Pediatrics and Adolescent Medicine Medical Center – University of Freiburg, Freiburg, Germany

Developmental milestones and physical therapy for Achondroplasia 

Orit Bartov, BSc.,  MPtPed, PT, Head, Physical Therapy, ALYN Hospital, Jerusalem, Israel

Assistive devices for Achondroplasia

Dr. Naomi Gefen, Ph.D, OT, Deputy-Director, ALYN Hospital; PI, Helmsley Pediatric & Adolescent Rehabilitation Research Center, Jerusalem, Israel

Monday June 3, 2024: Exploring Technology Interventions: Beyond Randomized Controlled Trials in Clinical Practice Evidence

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Greetings and Introduction

Dr. Naomi Gefen, Ph.D, OT (moderator), Deputy-Director, ALYN Hospital; PI, Helmsley Pediatric & Adolescent Rehabilitation Research Center, Jerusalem, Israel

A “FASTER” approach to generate research evidence for technology-based interventions in the field of disability and rehabilitation

Dr. Lisa K. Kenyon, PhD, PT, Department of Physical Therapy, Grand Valley State University, Grand Rapids, Michigan, USA

Innovative study designs for rehabilitation research: From mixed methods to randomized control trials                        

Dr. Marika Demers, PhD, erg. Associate professor, School of Rehabilitation, University of Montreal, Montreal, Quebec, Canada

Rehabilitation robotics: Methodologies used to evaluate the evidence 

Dr. David J. Reinkensmeyer, PhD, Professor, Depts. of Mechanical and Aerospace Engineering, Anatomy and Neurobiology, Biomedical Engineering & Physical Medicine and Rehabilitation, University of California at Irvine, California, USA  

 

Wednesday May 8, 2024: Children and families as partners in clinical care and rehabilitation research: Advocacy, Agency, Impediment

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Greetings and Introduction

Dr. Naomi Gefen, Ph.D, OT (moderator), Deputy-Director, ALYN Hospital; PI, Helmsley Pediatric & Adolescent Rehabilitation Research Center, Jerusalem, Israel

Should “Family centered” rehabilitation become “Family led”?

Dr. Maurit Beeri, Director General, ALYN Hospital, Jerusalem, Israel

Empowering Voices: Advocacy in Partnering with Children and Families in Clinical Care and Research 

Tali Kaplan - Founder and Executive Director, Little Steps - The step I choose
Dr. Naomi Gefen - Using the participatory design to improve function of individuals with Duchenne
Dr. Lori Rosenberg and James Haftel, Beit Finger - An inclusive study to plan the move from assisted to independent living with adults with severe cerebral palsy.

Importance of the pediatric patient and caregiver voice in healthcare, clinical trials, and research

Dr. Leanne West, Chief Engineer Pediatric Technologies, Georgia Institute of Technology, USA and President, International Children’s Advisory Network https://www.icanresearch.org/  

                                              

Monday April 8, 2024: The Child with Lower Limb Length Discrepancy: Orthotic and Surgical Management

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Greetings and Introduction

Dr Sharon Eylon (moderator), Head, Pediatric Orthopedic Rehabilitation and PARC PI, The Helmsley Pediatric & Adolescent Rehabilitation Research Center, ALYN Hospital, Jerusalem, Israel

Introduction to limb development and incidence of congenital deformity

Mr Peter Calder, Consultant Paediatric and Limb Reconstruction Orthopaedic Surgeon, Royal National Orthopaedic Hospital, London, UK

The Orthotic solution - Extension-prosthesis

Dr Sharon Eylon, Head, Pediatric Orthopedic Rehabilitation and PARC PI, The Helmsley Pediatric & Adolescent Rehabilitation Research Center, ALYN Hospital, Jerusalem, Israel

Quality of life and function of adults with Extension-prostheses, and the change in use in the era of Limb Lengthening surgery

Dr. Vladimir Goldman, Orthopedics Surgery Department, Pediatric Orthopedics Unit. Head of Limb Lengthening and Deformities Correction Service, Hadassah Medical Center, Faculty of Medicine Hebrew University of Jerusalem

Congenital Femur Deficiency/Tibial Hemimelia/Fibular Hemimelia - Classification, surgical treatment, enhancement of function

Mr Peter Calder, Consultant Paediatric and Limb Reconstruction Orthopaedic Surgeon, Royal National Orthopaedic Hospital, London, UK

 

Monday March 4, 2024: Large scale virtual reality systems for pediatric rehabilitation: State of the art or a white elephant?

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Greetings and Overview

Dr. Simon-Henri Schless (moderator), ​ Motion analysis and biofeedback laboratory and PARC PI, The Helmsley Pediatric & Adolescent Rehabilitation Research Center, ALYN Hospital, Jerusalem, Israel

Large scale VR (GRAIL) in pediatric rehabilitation: a puzzle of opportunity

Dr. Emilia Biffi, IRCCS E. Medea, Associazione La Nostra Famiglia, Bosisio Parini 

Clinical integration of the GRAIL in the pediatric setting

Dr. Simon-Henri Schless (moderator), ​ Motion analysis and biofeedback laboratory and PARC PI, The Helmsley Pediatric & Adolescent Rehabilitation Research Center, ALYN Hospital, Jerusalem, Israel

Can the use of the GRAIL improve gait function in children with a brain injury?

Dr. Gilad Sorek, Senior research assistant, The Helmsley Pediatric & Adolescent Rehabilitation Research Center, ALYN Hospital, Jerusalem, Israel and Post-doctoral fellow, School of Physical and Occupational Therapy, McGill University, Montreal, Canada

Tuesday February 6, 2024: Associations between Sensory and Emotional Pain: Using virtual reality to alleviate pediatric pain and anxiety

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Moderated by Dr. Neta Yitzhak

The experience of pain and emotion – A meeting of body, brain, and mind Dr. Gadi Gilam, Ph.D., Assistant Professor, Head of the tSCAN lab (translational Social, Cognitive, and Affective Neuroscience); Institute of Biomedical and Oral Research, Faculty of Dental Medicine, Hebrew University of Jerusalem

Using Virtual reality distraction to reduce fear and pain of children during burn wound care Prof. Hunter Hoffman, Ph.D., Director of the Virtual Reality Research Center at the Human Photonics Lab and Dept. of Psychology,  Univ. of Washington, Seattle, USA in collaboration with Dept of Anesthesiology and Pain Management; Faculty of a Harvard Medical School CME course entitled Pediatric Sedation

 

Monday January 15, 2024: Electroencephalography (EEG): A window into the mind?

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Moderated by Prof. Tamar Weiss

Attention research using EEG Prof. Elana Zion-Golumbic, Head, Human Neural Dynamics and Cognition Lab, Multidisciplinary Brain Research Center, Bar Ilan University, Ramat-Gan, Israel

EEG:  A window into understanding Neuro-Psychiatric disorders Dr. Felix Benninger, MD, Deputy Director Department of Neurology, Rabin Medical Center, Petach Tikva & Senior Lecturer and Head of the Laboratory of Clinical Neuroscience, Felsenstein Medical Research Center, University of Tel Aviv; Dr. Oded Shor, PhD, post-doctoral fellow, Dept. of Neurology, Rabin Medical Center, Petach Tikva, Israel

Can EEG follow up improve the treatment of acute brain injury? Dr. Keren Politi, MD, Head, Pediatric Neurological Services, ALYN Hospital; PI, Helmsley Pediatric & Adolescent Rehabilitation Research Center, Jerusalem, Israel