Wednesday May 8, 2024: Children and families as partners in clinical care and rehabilitation research: Advocacy, Agency, Impediment
Register Here
Greetings and Introduction
Dr. Naomi Gefen, Ph.D, OT (moderator), Deputy-Director, ALYN Hospital; PI, Helmsley Pediatric & Adolescent Rehabilitation Research Center, Jerusalem, Israel
Should “Family centered” rehabilitation become “Family led”?
Dr. Maurit Beeri, Director General, ALYN Hospital, Jerusalem, Israel
Empowering Voices: Advocacy in Partnering with Children and Families in Clinical Care and Research
Tali Kaplan - Founder and Executive Director, Little Steps - The step I choose
Dr. Naomi Gefen - Using the participatory design to improve function of individuals with Duchenne
Dr. Lori Rosenberg and James Haftel, Beit Finger - An inclusive study to plan the move from assisted to independent living with adults with severe cerebral palsy.
Importance of the pediatric patient and caregiver voice in healthcare, clinical trials, and research
Dr. Leanne West, Chief Engineer Pediatric Technologies, Georgia Institute of Technology, USA and President, International Children’s Advisory Network https://www.icanresearch.org/